eNews May 2024 in Easy Read

The right care would have given Finlay a chance

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  • Finlay Browne was a young man who had Down syndrome.

  • One day he got very sick and had to go to Bathurst Base Hospital.

  • The health workers did not give him the care he needed.

  • He died in December 2016.

    He was 16 years old.

  • The NSW Coroner’s Court looks into what happened before someone died.

  • The Coroner’s Court found Bathurst Base Hospital did not do a good job caring for Finlay.

  • CID will keep working so that this does not happen again.

Updated health resources

My Rights Matter Grant projects

  • CID gave grants for projects about supported decision making.

    A grant is money to do a project.

  • The grants were for projects talking about things like

    • Pregnancy
    • Law
    • LGBTIQA+ issues
    What does LGBTIQA+ mean?
    • Communication.

  • CID is proud of the work done by all the projects.

  • We will talk about the things each project did on our website.

    Learn more about the grant projects

Survey from the National Centre of Excellence in Intellectual Disability Health

  • There is a new Centre.

    It is called the National Centre of Excellence in Intellectual Disability Health.

    We will say Centre for short.

  • CID is part of the Centre.

  • The Centre is not a building.

  • It is a group of work places who teamed up.

    They work together.

  • The Centre works all over Australia.

  • The Centre will make sure people with intellectual disability get better health care.

  • We have made a plan for the Centre work.

  • We want to know what others think is important for making health care better.

    We want to hear their ideas.

  • There are 3 ways you can tell us what you think.

    You choose 1.

  • You can do a survey.

    It is online.

    Do the survey about the Centre

  • You can talk to us on the phone.

  • You can be part of a group talk.

  • Someone you know can help you to do the survey.

  • Someone you know can support you to talk to us.

  • You can bring someone to the group talk.

  • You can call us on 02 9065 8076.

    Ask for Liz or Kate.

  • You can email us at nceidh@unsw.edu.au.

A hen, a pen and a passion for words

  • Naomi Lake is a writer.

    She has Down Syndrome.

  • Naomi spoke at the United Nations in New York for World Down Syndrome Day.

  • Last year we talked to Naomi about her work for our podcast.

  • You can listen on our website.

    Listen to A hen, a pen and a passion for words

Board Groups

  • These CID Board groups are coming up in June.

  • You can learn more about the CID Board groups here.

    Learn about Board groups

  • The Advocacy Group is meeting on Thursday 13 June.

  • It is for members of the CID Advocacy Group.

  • Members can come online or in person.

  • If you want to join the Advocacy Group

  • Learn 2 Lead is meeting on Thursday 20 June.

  • It is for members of CID.

  • Members can come online or in person.

  • If you want to join Learn 2 Lead

Stella Young Award

  • The Stella Young Award is open for applications.

  • It is for artists with a disability aged 16 to 30 who work in

    • ComedyComedymeans art that is funny.
    • Performing artsPerforming artsare things you do on stage like
    • Singing
    • Dancing
    • Acting
    • Screen culture.Screen cultureis art you see on a screen like
    • Videos
    • Video games
    • Art made on a computer.

  • You can apply for the Stella Young Award by 5pm on Tuesday 4 June.

    Apply for the Stella Young Award

Learn about going online

Study from GeneEQUAL

  • GeneEQUAL wants to talk to people about genetic health care.

  • Genetic health care is for people who

    • have a genetic condition
    • might have a genetic condition
    • want to know more about genetic conditions and tests

  • They want to talk to people

    • Online
    • Face to face
    • Over the phone.

  • Learn more about the study here.

    GeneEQUAL study

Survey about train stations

  • Transport for NSW wants to hear from people with disability.

  • They want to talk to people about how accessible train stations are.

  • They want to talk to people who use these train stations

    • Macquarie Fields
    • Chester Hill
    • Bardwell Park
    • Lewisham
    • Canberra
    • Kempsey
    • Kendall
    • Macksville
    • Nambucca Heads
    • Sawtell
    • Urunga
    • Wingham
    • Yass

  • You can learn more and sign up for an online workshop here.

    Train station survey

Got a question?

  • Our friendly team can answer your questions.

    They can help you find the information you need.

    Call us on 1800 424 065.

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